Personal Stories

CSL Behring is committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide. Anyone coping with a rare disease knows first hand how difficult and frustrating it can be to find the correct diagnosis and proper treatment for their condition. Sometimes it takes years. Yet, when the search is over, many people can – and do – lead active, fulfilling lives.

The people profiled here have all traveled the long road to better health or have dedicated their lives to helping people who are managing a rare disease. Learn their stories.

Emily Bartko Congenital Fibrinogen Deficiency   Jens Burk Hemophilia A   Ben Gruher Hemophilia A   Mary DeArmond von Willebrand Disease (VWD), Type 3       Miguel Gutiérrez Hemophilia A   Perry Parker Hemophilia A   Diane Rankin von Willebrand Disease (VWD), Type 1   Gonzalo Perez Sanchez Hemophilia A