International Rare Disease Day: CSL Behring supports this internationally recognized day established to raise awareness of rare diseases and their impact on patients’ lives by policy makers and the public at large. Rare Disease Day reinforces the importance of rare diseases as a public health priority.
European Organization for Rare Diseases (EURORDIS): CSL Behring partners with EURORDIS, a patient-driven alliance of patient organizations and individuals active in the field of rare diseases. Recently, we awarded EURORDIS a three-year educational grant for the development of a new European rare diseases policy project. This project is the first European initiative designed to collect patient opinions on rare disease policies, intended to build consensus on preferred public health policy scenarios.
LEAD Program: In the U.S., the Local Empowerment for Advocacy Development (LEAD) Program allows CSL Behring to partner with local patient organizations. CSL Behring believes that successful advocacy results from the empowerment of those that are impacted by a particular issue.
Raise Your Voice! Program: This U.S. program supports youth advocacy training programs administered by local patient advocacy organizations. The training program introduces youths aged 16 to 23 years to advocacy.
11/4/2012 3:49 PM